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Place of Good Hope: Stories of little patients

  • Published in Society
Mesto Nadejdy
"Today my son waved his hand for the first time in his life,"
the mother of three-year-old Sasha shares her joy. He has a severe diagnosis – infantile cerebral palsy. The boy does not speak much, does not walk. Parents are happy that they were able to get into the new rehabilitation center in Yakutsk, and their son already has visible results. Before that, they had to travel to Neryungri every year.

ALROSA comes to the rescue

Although not all the equipment has arrived, not all medical offices are working in full force, but already today experts say that there are no analogues to such a center in the entire Far East.
15 hectares of territory, surrounded by beautiful pine trees, a building of 12.4 thousand square meters, super-modern equipment for 150 million rubles! During the year, about 2.500 children with sensory, mental disorders, pathology of the musculoskeletal system will be able to undergo rehabilitation there.

The center has not only medical offices, but also a swimming pool, sports and assembly halls, student classes, playrooms, recreation rooms for children, a hotel for parents, a cafe, a dining room with high-class equipment, and even a small stable.
It is clear that for the construction of such an ultramodern building, not millions, but hundreds of millions of rubles were needed. Without attracting extra budgetary funds, it would be difficult for the republic to cope with such a global task.

ALROSA extended a helping hand, and at the cost of its annual donations to the Trust Fund of Future Generations of the Republic of Sakha (Yakutia) under the social and economic development agreement in December 2014, the construction of a children's rehabilitation center in an eco-friendly area was launched - on 11 km of the Sergelyakhsky highway in Yakutsk. The total cost of the project - taking into account the costs of design, technological connection to engineering networks and other costs - amounted to about 871 million rubles, of which 787 million - the money allocated by ALROSA.

The head of the diamond company, Sergei Ivanov, personally inspected the building under construction in April last year. He carefully examined the building, asked if there were enough funds allocated for the purchase of furniture and equipment, not a single detail, not even the quality of interior decoration, escaped his attention.

Everything is individual

One of the features of the center is an individual approach to each child, because there are so many rooms where everything will be equipped for close contact between a specialist and a child in need of rehabilitation.

The director of the center, Zinaida Maksimova, gave us a short excursion.

"Here is the room where children undergo music therapy; it is not only for those with hearing and speech disabilities, but also for those with a problem with the musculoskeletal system. There will be a sensory room, and here is the room for the relaxation of patients with autism, and in this one we will install equipment for verticalization, here - special massage baths.
Our kids will have the opportunity to visit the pool, and take Adaptive Therapy.
Some equipment has already been received; something else is on the way. Now we are waiting with great excitement when all this comes, everything will be arranged in places, and we’ll put it into operation," Zinaida Maksimova shares.

According to the director, now there are already 40 children in the center. Basically, they are all with speech defects, one with auditory impairment and another with cerebral palsy. It is clear that the center has not yet reached its full potential. When this happens, the institution can receive 250 children for rehabilitation under the age of 18 at once. The center is designed for 100 beds and 150 beds for day stay.

At the moment, there are 46 specialists working here, but the need for staff is high. They need not only highly specialized personnel, but also technical workers. Judge for yourself: thousands of square meters of the premises, there are more than 80 bathrooms, more than two thousand lamps!

Ideally, more than 400 people were to work at the institution, but this figure was revised downwards and it was decided to involve 289 specialists.
More than a week is left before the official opening of the Republican Rehabilitation Center for children and adolescents with disabilities, but the first forty little patients are already receiving help.

Nothing matters more than communication

Zinaida Maksimova, director of the Children's Rehabilitation Center, for many years headed the Republican Center for Rehabilitation of Hearing and Speech in Neryungri, served as Deputy Minister of Labor and Social Development of the Republic of Sakha (Yakutia).

"The children's rehabilitation center in Yakutsk is designed for 100 beds and 150 beds for day stay. This will help children and adolescents under 18 years from all over the republic. To get to the center, the parents of the child who needs rehabilitation will have to apply to the social protection department," says Zinaida Maksimova. "In 2018, about three thousand children with disabilities will benefit from our services. We received first 40 children with speech disorders from Yakutsk. A little later, when the necessary equipment is installed, we will begin to receive patients from the regions of the republic."

The Center cooperates with the departments of defectologists, mental neurological diseases, ENT of the NEFU Medical Institute.
Zinaida Maksimova says that the main task of the center is to help in the integration of children into society: "We are here not to treat, and help our children to become productive members of society. Our cast-iron rule in the new center is communication. I even say to our plumber: “You should smile at the children, be friendly towards them." And everything must be in that way."

The story of Dayaana

Six-year-old Dayaana, a cheerful girl with two long strawberry blond pigtails, is carefully doing a puzzle to develop fine motor skills of the hands. This is part of the therapy. A mother is always there, she does not just support her daughter, but she is also learning much. Then they will train at home. For only persistence and constant training will help to overcome the ailment.
Dayaana has been undergoing rehabilitation since three years. She has residual encephalopathy (pathology of the brain and central nervous system), which is why speech is delayed (mutism).

"My daughter was three years old when we realized that something was wrong. Her peers talked in full swing, but ours was silent," says Dayaana's mother Diana. "We were advised to apply to the Center of hearing and speech SUVAG in Neryungri. We went there every year, lived there for a long time, and underwent treatment. The results were evident. When we found out that the rehabilitation center would be opened in Yakutsk, where we live, and, moreover, that our rehabilitation therapist Akulina Lavrentieva has moved here from Neryungri, we were over the top with happiness!"

The Yakovlevs were registered in the waiting list of the Social Security Administration, and having got the invitation, they immediately came to the new center. Every day Dayaana has training hours with a psychologist, speech therapist, takes physiotherapy and massage therapy, rhythmics. Parents are satisfied with the results of their daughter.

The girl goes to a regular kindergarten, she speaks briskly, but according to her mother, she has problems with the grammatical system of speech. Intellectual growth and development of their daughter is at the level of a four-year child because of a speech delay. But parents hope that in one year that has remained until school, they will catch up with her peers.

"Thanks to such a wonderful center, wonderful specialists, we believe that our daughter will succeed," Dayaana's mother is confident.

The story of Milana

Four-year-old Milana is the third, the youngest long-awaited child in the Koryakins family. She was three years old when, after her examination at the Medical Center, they were told to apply for disability benefits due to a delay in the development of speech. But her parents did not do this. "We decided that we would cope, and that we do not need the status of disabled,” says her mother Veronika.

The family moved to Yakutsk from the Abyi ulus in September last year, they immediately wrote an application to the local department of social protection, and that was so surprising for them to receive an invitation to a new rehabilitation center in January.

"We have great changes, thanks to the specialists of the center! And it's only two weeks! Our daughter is becoming more and more socialized. She goes to an ordinary kindergarten, but because of problems with speech she did not communicate with anyone there, she was out of phase with children,” Milana's mom shares. "And now she is playing with the children in full swing, she is in contact with adults! It's such a joy for us, parents!"

Mother and daughter come to the center at exactly 8.30. They have a very busy day. Milana has individual lessons with a speech therapist, psychologist, she takes physical therapy and rhythmics.

"We return home in the evening, and the daughter repeats what she learned, tells everyone how her day went," Veronika says. "Everyone saw how she changed, that there is an improvement. We will definitely contact the center again and again. As many times as we need it!"

The story of Sasha

Although the first patients of the center were to become only children with hearing and speech impairments, as not all equipment is installed to work with those who have the pathology of the musculoskeletal system. But Maria Vasilievna, Sasha's mother, insisted that her son be taken for rehabilitation. And she does not regret it.

"As soon as we learned that the rehabilitation center will be opened in Yakutsk, we immediately appealed to the Social Security Administration, and what a joy it was, you can't imagine, to receive an invitation on January 22," says Maria Kuraeva.

Three-year-old Sasha has cerebral palsy. He cannot walk, eat independently, hardly speaks. But his parents are full of optimism and faith in the professionalism of the center's specialists.

"The function of his brain is retained. So our son understands everything. He is very happy when we come here. For two weeks we have remarkable results! We take rhythmics, individually train with a psychologist and speech therapist. For the second day he has been taking Biodynamic Fascial Modulation. BFM is a new technique; this is an effect on the connective tissue of the body. Its goal is to remove the internal tension, that is, to eliminate the spasticity that appears in the body for one reason or another," Maria says.

And she also shared with us one more great achievement of her son. The other day, he clearly uttered: "Mom and Dad!"

Is this not happiness?

By Irina Martynova, YSIA